Valuable insight from people who get it.
. She began volunteering with the group and sharing her own psoriatic arthritis story through the website. Through her experience, Krivohlavek found a new passion for health advocacy and decided to go back to school to study population health.
“I had one goal and it didn’t pan out the way I thought it would,” she says. “Now, I’ve modified it and moved on to the next.” Not everyone is able to completely change their career paths, but Krivohlavek says that being open to creating new goals—whatever they are—can help you navigate a really unexpected disease. “One of the things that having a chronic illness will teach you is that change is constant,” she says.
With that said, psoriatic arthritis is an unpredictable condition. The frustrating truth is that you can prepare as much as possible and still wake up feeling stiff and achy on the day you’ve been looking forward to. Alexander recalls a time when she was really looking forward to attending a gala at her son’s school—which she rested days in advance for—but she still felt unwell and stiff the day of the event. Determined to go, she gave herself plenty of time to get ready that day.
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