American babies and toddlers with disabilities are entitled to publicly funded therapies but many health care providers can no longer afford to participate in…
Alexander watches Paw Patrol with fervor, bowls his baby brother over with hugs and does everything with gusto.
Since all U.S. states and territories accept federal funding for Early Intervention, they are obligated to provide services to kids who qualify under the Individuals with Disabilities Education Act. Service delays in Illinois, where Alexander lives, nearly doubled in 2022, according to Chicago-based early childhood advocacy organization Start Early. Waitlists — technically not allowed since all eligible kids are entitled to Early Intervention — have increased dramatically and thousands of providers have left the field, according to the Illinois Department of Human Services.
Families with private insurance can opt to pay for therapy appointments outside the Early Intervention program, but those without the means can be left behind, according to Ziemba.Research supports her assessment. A report published this year by the National Institute for Early Education Research found that Asian, Hispanic and Black children are less likely to receive Early Intervention and Early Childhood Special Education services than white non-Hispanic children.
As families lose access to the free or reduced-cost therapies, pressure builds on schools to pick up the slack, but they’re short on special education teachers, too. "We remain committed to giving our service providers the support and resources they deserve for caring for our state’s children,” said Alex Gough, a spokesperson for the governor's office.
Aria qualified for speech, developmental and occupational therapy, and was diagnosed with autism when Faulkner was finally able to secure an appointment with a developmental pediatrician, two and a half hours away in St. Louis. Although Aria started speech therapy promptly, she has been on the waitlist for developmental therapy for more than a year.“You need to get answers for your child," she said. “But here, now you have to sit and wait.
Hilda Garcia’s son, Alexander, qualified for five Early Intervention therapies in 2021 — physical, occupational, developmental, behavioral and speech. But the family waited more than a year before he received any of those services in-person. Garcia, who speaks English, is part of a primarily Spanish-speaking community in West Chicago, and she knows many parents can't advocate for their kids in a second language.
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