Wes Lacey and his wife, Rebecca Oldham, had no idea their son Jack's lopsided smile would turn out to be a sign of diffuse pontine glioma, or DIPG.
, the tumor starts in the brain stem and is more common in children ages 5 to 10, although it can appear in kids of any age. Symptoms include issues with balance and walking, eyesight, chewing and swallowing, and facial weakness or drooping, often on one side -- just like Jack exhibited. Sadly, the tumor growing inside Jack's brainstem was inoperable because it was growing in an integral part of his brain.
The parents also wanted their boy to spend as much time as possible with his little sister, Charlotte ."If we have to accept this crazy, monstrous news, if we have to gulp down our insane amount of tears, anger, heartbreak, grief, then we need to make sure that this bright, intelligent young boy gets the send off that he deserves," Rebecca wrote on his GoFundMe page.
There were airplane and helicopter rides, a home visit from Hells Angels bikers, trips to Peppa Pig World and Disneyland Paris, and vacations in London, Spain, Portugal, Greece, and Wales, the“Jack has done more in the last 11 months than most adults do in their entire lives," his mom told the newspaper."If there was anything he wanted in life, he got it."In an update on the family's GoFundMe page, Wes shared that Jack passed away Monday.
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