The disease impacts between 90,000 to 100,000 Americans and African Americans make up roughly 70,000 of those cases, according to LifeSouth.
– At 28 years old, Vanessa Baffour-Singletary balances life as a wife, mother and a career in educational policy.“There are days when I feel fine and then all of a sudden pain would hit,” Baffour-Singletary said. “It feels like someone is hammering on your body in different places. Our pain is invisible. Sometimes people do not believe us.”
“For me, it is in a lot of my joints,” Baffour-Singletary said. “So, the blood is not flowing to my joints. I have a hip replacement. I take my medication. There are some chemotherapy drugs that I am able to take.”Baffour-Singletary has already been hospitalized more than four times already this year alone.
James Skahn works with LifeSouth, which not only makes sure blood is supplied to local hospitals but helps find matches for blood transfusions and bone marrow transplants.
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